Conference Workshop - Recognition at last: Inclusive communities and services for people ageing with post polio syndrome!



This workshop is bringing polio survivors and clinicians from around Australia to call for recognition of the experiences and needs of people ageing with post-polio syndrome. The workshop aim is to improve services. Polio survivors also hope to raise awareness of the need for polio vaccination in the community.
Presenters include polio survivors, allied health, and medical practitioners – with welcome address by polio survivor the Hon Kim Beazley AC and Lady Marigold Southey AC who worked with polio survivors during WWII
The workshop is being led by older polio survivors. Robyn Abrahams (74) wants health and aged care service providers to understand what older polio survivors have experienced:
I was three when I contracted polio. I was put into an infectious diseases hospital and my mother and father weren’t allowed to visit for months. That was so cruel. We were told being disabled was a sign of laziness. We weren’t allowed to complain, we just had to endure it all. I was in an iron lung for a while.
When we turned 16 the little support we had ended, and we were just supposed to get on with life. It wasn’t until I had a stroke in 2017 that I learned how to pick myself up when I fall. We were never taught that. They didn’t want to know we existed. We have Long Polio and no one is listening to what we need.
Click here to listen to Robyn in this (<1 min) promo video
Workshop coordinator Shirley Glance OAM, is President of Post Polio Victoria, said
There was so much stigma around polio; people didn’t want to say they had it in those days. We were told we didn’t have a disability, even though we had trouble walking. We just had to put up and shut up. We weren’t allowed to be disabled. Some of us now have Post Polio Syndrome, which causes progressive muscle weakness, pain and fatigue. We need help and we need service providers to understand what we need. That’s why this workshop is so important.
Click here to listen to Shirley in this (<1 min promo video)
Dr Peter Freckleton will share he experiences at the workshop, noted
We have been fighting all our lives to get the support we need, and we are still fighting now. Some people with polio denied their disabilities and didn’t apply for NDIS. Now they are struggling to get the support they need through My Age Care and will end up prematurely in residential aged care. We want our disabilities recognised and we want to be supported.
We also want to say to the community – have the polio vaccine. Polio is now rebounding due to under vaccination. If people think having the vaccine is worse than getting polio, they need to take a walk in our shoes. Ageing with polio is difficult. Prevention is better than cure, and in this case their isn't even a cure, so get vaccinated.
Click here to listen to Peter in this (<1 min promo video)
AAG will produce a policy paper to educate service providers, policy makers, researchers and the broader community.
Click here for more information about this workshop and others